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Joubert Syndrome UK

 



 

August 2011 - Family Fun Day | Print |

On the 13th August 2011 JSUK held it's first Family Fun Day!

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We had fun with Aromatherapy, lined up for a nice relaxing massage and were finally entertained with a Magic Show!

Everyone who attended had a great day, besides all the fun things to do families had the opportunity to learn more about the genes involved with Joubert Syndrome and Genetic Research that is happening in the UK.

Prof. C.A.Johnson kindly joined us to explain about his research project and was happy to answer any genetic questions that families had.

Most importantly JSUK Families were able to have the opportunity to sit and talk to each other in a relaxed enviroment, form new freindships and support each other.

None of this would have been possible without the generous donations that have been made to JSUK, along with our Volunteers who gave up their time and energy to support us on the day.


THANK YOU TO EVERYONE WHO SUPPORTED US!

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