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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Charity Funding & Aid

Click on the images for more information.



Lifeline 4 Kids | Print |
Lifeline 4 Kids
215 West End Lane
West Hampstead
London
W9 3NN
Tel: 02077 941661
 
Make A Wish | Print |
Make-A-Wish Foundation UK
329-331 London Road
Camberley
Surrey
GU15 3HQ
Tel:  01276 405060
 
React | Print |
St. Luke's House
270 Sandycombe Road
Kew
Surrey
TW9 3NP
Tel: 02089 402575
 
Variety Club | Print |
Variety Club Children's Charity
Variety Club House
93 Bayham Street
London
NW1 0AG
 
Whizz Kidz | Print |
Whizz Kidz, Elliot House
10-12 Allington Street
London
SW1E 5EH
Tel: 0207 233 6600
 
Listening Books | Print |

Charity providing adults and children a postal and internet based audiobook library service for anyone who finds it difficult to access printed books.

Listening Books
12 Lant St
London
SE1 1HQ
Tel:02074079417
Fax: 020 7403 1377
 
PhysCap | Print |

PhysCap is a charity, based in Leeds, dedicated to improving the quality of life for children suffering from severe physical disabilities.

 
Turn2us | Print |

Turn2us is a new charity offering a groundbreaking online service to help the millions of people in need in the UK. For the first time, people can access information on all benefits and grants available to them from both statutory and voluntary organisations, at no cost. In many cases, applications for support can be made directly from the website.

 
Victoria & David Beckham Childrens Charity | Print |
This e-mail address is being protected from spambots. You need JavaScript enabled to view it The Victoria and David Beckham Children's Charity
180 Strand
London
WC2R 1BL
 
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