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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Family Fund | Print |
Family Fund Unit
4 Alpha Court
Monks Cross Drive
Huntingdon
York
YO32 9WN
Tel: 0845 1304542
 

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