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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Blue Badge Scheme | Print |

Blue Badge Scheme

The blue badge is a parking permit that allows a range of parking concessions.

You can apply for the badge from age 2 and automatically qualify if you recieve the higher rate mobilty component of D.L.A. or registerd blind.

You may also qualify if you have a permanent disability that makes you unable to walk or which makes walking very difficult.

Contact you Local Council for an application form. 

 

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