Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Blue Badge Scheme | Print |

Blue Badge Scheme

The blue badge is a parking permit that allows a range of parking concessions.

You can apply for the badge from age 2 and automatically qualify if you recieve the higher rate mobilty component of D.L.A. or registerd blind.

You may also qualify if you have a permanent disability that makes you unable to walk or which makes walking very difficult.

Contact you Local Council for an application form. 


Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
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