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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Disabled Facilities Grant | Print |

Disabled Facilities Grant

A Disabled Facilities Grant is a local council grant to help towards the cost of adapting your home.

There is no means testing for families of disabled children under 19. 

Disabled Facilities Grants are available in England, Wales and Northern Ireland only.

Contact your local council for more information.

Scottish residents should contact the social services department of their local council for information on any grants that may be available.

 

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